Williams Syndrome Association
Williams Syndrome Association
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All "Weekend for Williams" Promos
Here are all the promo videos created to promote Weekend for Williams Syndrome. Thanks to all the Adventure Seekers, families, and individuals with Williams syndrome who helped out!
Переглядів: 81

Відео

Ep 37 - Weekend for Williams Live with Barb Nelson and Tayden Larsen
Переглядів 7514 днів тому
Recorded Live on June 1st, Jen and Brendan and joined by Producer Joel and WSA Vice President of Programming Sarah Giddings during their marathon Weekend for Williams fundraiser. The podcast was also part of a POWER HOUR where all donations were doubled thanks to Barb Nelson, the owner of Brinkley's Boutique. Barb joined the gang to talk about all the different ways Brinkley's Boutique raises a...
Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney
Переглядів 11228 днів тому
During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies. Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinla...
Ep 35 - Awarenessing with Clare Neal and Micah Wilgus
Переглядів 91Місяць тому
We're well into Williams Syndrome Awareness Month, and Jen and Brendan are joined by Clare Neal, whose niece spearheaded a fundraising effort with her dance troupe. After that, they're joined by Micah Wilgus, who is celebrating his 10th year of work at @McDonalds and is a tremendous advocate for Williams syndrome. Producer Joel also gives an update on his son Bennett's Chili Pepper Fundraiser w...
Ep 34 - Kicking Off Awareness Month with Sofia Napoli and Denise Callen
Переглядів 121Місяць тому
It's May, which means it's Awareness Month! Kicking the bleep out of the start of Awareness Month is Sofia Napoli. She joins Brendan and Producer Joel (filling in for Jen) to talk about the importance of advocating for yourself and to pump everyone up for this month's activities. Then Jen and Brendan are joined by Denise Callen, Director of Walks for the WSA, to talk about what is different thi...
Ep 33 - Turning Back the Years with Jen Sellars and Mike Hladish
Переглядів 3252 місяці тому
In this episode, Jen and Brendan are joined by Jen and Mike...wait, that sounds confusing. Our hosts are joined by Jen Sellars (teacher and mom to a daughter with WS) and her friend Mike Hladish. They share their amazing story of growing up and reconnecting in a different part of the country that should warm your heart! We would like to acknowledge the wonderful organization Just People (www.ju...
Ep 32 - Living, Loving & Guardianship with Stella Beard and Clayton Carroll
Переглядів 932 місяці тому
In this episode, Jen and Brendan hear the fantastic and fascinating story of Stella Beard and Clayton Carroll. The mother and son duo discuss the tricky navigation of post-high school life and their journey from total guardianship to supported decision-making. Learn more about Clayton Carroll by searching "Clayton Carroll Speaks" on Facebook and search for Clayton Carroll on UA-cam. Reach out t...
Ep 31 - Leadership and Whispering Trails with Joshua Dean and Emma Thomas
Переглядів 1273 місяці тому
Producer Joel joins Brendan as they interview Joshua Dean, an adventurous camper, hard worker, and fantastic leader fresh off his latest week in Georgia at Camp Blue Skies. Then, Jen and Brendan talk to Emma Thomas, Camp Director of Whispering Trails Therapy Camp and Teen Camp. Registration for the 2024 camp in July opens soon, and Emma tells us why the camp experience can be incredibly benefic...
Ep 30 - Joyeux Anniveraire! with Steph Caron and Cyndra Cole
Переглядів 873 місяці тому
It's our 1-year extravaganza! Thanks so much to all of you for tuning in and supporting our show. To celebrate, we are joined by OG co-host Stephanie Caron to update us on how she's doing and reflect on what starting the podcast has meant to her. Then Cyndra Cole, former WSA Board President and Episode 2 guest, turns the tables and asks us questions received from the audience! Cheers to many mo...
Ep 29 - Prepping for College with Pascale and Gerald Momplaisir
Переглядів 934 місяці тому
It's the last show of Year 1 of The Starry-Eyed Pod! Jen and Brendan are joined by Gerald and Pascale Momplaisir from Baltimore, MD. This Dad and Daughter Duo shares the excitement and opportunities of preparing for life after high school and getting ready for college. Pascale also gives us some insight into the particular challenges of being a young woman of color with a disability while Geral...
Ep 28 - Heart Health Awareness with Jessica Stranz and Benjamin Jacob (HD Version)
Переглядів 1414 місяці тому
Hey, look! We're so fresh and so clean! There is a new logo and new visuals, but it's the same awesome show! First up is Jessica Stranz, an adult with WS from Michigan, sharing with Jen and Brendan her love of bowling, antiquing, and planes! Her journey with Williams syndrome is really wonderful! Then, for Heart Health Awareness month, we're joined by Benjamin Jacob, who turned growing up with ...
Ep 27 - The Tale of Alex and Alexandra
Переглядів 2455 місяців тому
Hark! Come gather ye round to hear the tale of Alex and Alexandra, who live lives touched by Williams syndrome! The show is joined today by Alexandra Reneer, an adult with WS living in Utah. She shares with us how being a dancer has allowed her to stay physically healthy and gives her the confidence to teach dance to others with developmental disabilities! Then we're joined by Alex Chiarappa. S...
Ep 26 - Phreezing in Phoenix with Nick, Lindsey, and J Chap!
Переглядів 2625 місяців тому
The WSA team is in Phoenix, AZ, doing more prep work for the upcoming WSA Convention, July 9-13, 2024, at the Downtown Hyatt Regency Hotel. Since the room block will be available for reservations starting Wednesday, January 10, we thought it would be a good time for more convention talk! Nick and Lindsey are back to talk about how preparations are coming. Then Jen is joined by Jen...Jen Chaplin...
Ep 25: Sharing Journeys with Anne Lemieux-Pocock, Tobi Akbas, and Hayley Cuccinello
Переглядів 2375 місяців тому
Happy Holidays from all of us at The Starry-Eyed Effect! It's a very special episode as we're joined by Anne Lemieux-Pocock, who, in addition to being Brendan's mom, is an accomplished writer. She's sharing her journey of being a mom to an individual with WS in beautiful chapters called "Being & Becoming: A Williams Syndrome ‘Mom-oir'” available at medium.com/@annelemieuxpocock. Then we're join...
Ep 24: Ottenheimer to the Rescue! with Scott Ottenheimer
Переглядів 1126 місяців тому
Look...did I have a whole other episode planned and then couldn't get it scheduled and was bailed out by awesome Board member Scott Ottenheimer? Maybe, but we were always going to have Scott as a guest! As his time on the WSA Board of Trustees comes to a close, Scott talks to Brendan and Jen about his time serving the WSA and how it has set the organization up for the future! As a community, we...
Ep 23: Caregiving the Caregivers with Sarah Giddings
Переглядів 1186 місяців тому
Ep 23: Caregiving the Caregivers with Sarah Giddings
Ep 22: 'Zona talk with Nick and Lindsey
Переглядів 1617 місяців тому
Ep 22: 'Zona talk with Nick and Lindsey
Ep 21: The Spooky Oooky Effect with Megan, Julie, Marty McFly, a Cloud, and Prof. Dilo Ph’Saurus
Переглядів 1517 місяців тому
Ep 21: The Spooky Oooky Effect with Megan, Julie, Marty McFly, a Cloud, and Prof. Dilo Ph’Saurus
Ep 20: Gratitude and Gettin’ Fancy with Callie Truelove, Camille and Anthony Filippazzo
Переглядів 8008 місяців тому
Ep 20: Gratitude and Gettin’ Fancy with Callie Truelove, Camille and Anthony Filippazzo
Ep 19: Live from Orlando with the Adventure Seekers
Переглядів 1598 місяців тому
Ep 19: Live from Orlando with the Adventure Seekers
Ep 18: Volunteering with the Gang
Переглядів 1799 місяців тому
Ep 18: Volunteering with the Gang
Ep 17: Back to School with Michelle Self
Переглядів 1659 місяців тому
Ep 17: Back to School with Michelle Self
Ep 16: Camp and Speech with Kayla Patak and Bianca Corozzo
Переглядів 20710 місяців тому
Ep 16: Camp and Speech with Kayla Patak and Bianca Corozzo
Ep 15: LIVE FROM CAMP with the gang!
Переглядів 22710 місяців тому
Ep 15: LIVE FROM CAMP with the gang!
Ep 14: Team USA and Team Teachers with Maddie Woo, Cassandra Davide, and Kim Scheier
Переглядів 25811 місяців тому
Ep 14: Team USA and Team Teachers with Maddie Woo, Cassandra Davide, and Kim Scheier
Ep 13: 7q11.23 Day with Kieran Devin Johnson and Jocelyn Krebs
Переглядів 34011 місяців тому
Ep 13: 7q11.23 Day with Kieran Devin Johnson and Jocelyn Krebs
Ep 12: The Birch Family
Переглядів 33411 місяців тому
Ep 12: The Birch Family
Ep 11: Tyler Levy and Dr. Barbara Pober
Переглядів 283Рік тому
Ep 11: Tyler Levy and Dr. Barbara Pober
WSA Scott Grant Video :90
Переглядів 139Рік тому
WSA Scott Grant Video :90
Ep 10: Singing Pretty with Mariella Elm, Tommy Barbarella, and Kristen Van Handel
Переглядів 296Рік тому
Ep 10: Singing Pretty with Mariella Elm, Tommy Barbarella, and Kristen Van Handel

КОМЕНТАРІ

  • @ileanamaciel4486
    @ileanamaciel4486 5 днів тому

    I love you guys

  • @kathleengamso3032
    @kathleengamso3032 5 днів тому

    Donate to the Williams syndrome association

  • @perrytito
    @perrytito 5 днів тому

    I love y'all, my people and greetings from New Zealand💙❤💚

  • @pim5490
    @pim5490 5 днів тому

    DONATE FOR AWARENESS OF WILLIAMS SYNDROME 💙❤️💚

    • @perrytito
      @perrytito 5 днів тому

      Hey👋

    • @pim5490
      @pim5490 5 днів тому

      @@perrytito Hey Perry 👋🏽

  • @denisewilson1937
    @denisewilson1937 14 днів тому

    Great podcast. Beautiful rendition of the Star Spangled Banner, Stella!🇺🇲

  • @pim5490
    @pim5490 14 днів тому

    Brendan I keep learning stuff about you all the time. You were on a show on MTV. 😮 that is awesome. You are truly a man with many wonderful qualities and difficult experiences you can share. 😊

  • @pim5490
    @pim5490 14 днів тому

    Great podcast. Great cause Weekend for Williams ❤

  • @denisewilson1937
    @denisewilson1937 27 днів тому

    What a gut wrenching, wonderful episode. It reinforces the need to cherish everyday with our precious ones. It also encouraged me to do all I can for WS awareness. ❤

  • @pim5490
    @pim5490 28 днів тому

    Let me just start by saying I almost didn't watch this episode. (Wasn't sure my emotions could handle it) I couldn't imagine losing a child. Obviously most of the viewers are here because of a person with WS so you automatically think of your WS blessing and it can hit hard. I just thought...... just start the video and see what happens, if it's too much you can stop and come back later or not. Thankful I thought that because while there were tears it was still very informative and gave a positive message and a message of hope. Thank you to both the mothers for sharing their experiences with us. ❤ keep raising awareness 💙❤️💚

  • @pim5490
    @pim5490 Місяць тому

    One of my favorite things is watching week after week and learning something new and interesting about Brendan...... i mean how have i not learned he is a sailboat enthusiasts ⛵️😁

    • @brendanlemieux6039
      @brendanlemieux6039 26 днів тому

      Growing up as a kid my family was big into sailing so I spent quite a bit of time on a variety of different kind of boats. Definitely miss being on the water for sure, but hope to get back out there at some point :)

  • @pim5490
    @pim5490 Місяць тому

    Micah was such a great guest with such wonderful and honest expierences. Love to hear the job life for adults with disabilities. I think it is very important for their lives to get experiences and learn task that give them independence and confidence. Not to mention the company is getting a wonderful employee😊

  • @pim5490
    @pim5490 Місяць тому

    What a wonderful way to raise funds and awareness for Williams Syndrome by having a dance performance. Love that idea. Prayers for Avery and her precious ❤️ heart. 🙏🏽 i agree the wsa organization is really such a blessing to many. 💙❤️💚

  • @denisewilson1937
    @denisewilson1937 Місяць тому

    Thank you so much Sofia for sharing your heart. I love that my little granddaughter with WS has women like you to be her role model. I would love to, someday, see you on the WSA board. God bless you! Wonderful episode!❤

  • @AdoradorayGuerrera
    @AdoradorayGuerrera Місяць тому

    Cheers from Paraguay.

  • @AdoradorayGuerrera
    @AdoradorayGuerrera Місяць тому

    ❤️❤️❤️❤️

  • @kaylapatak287
    @kaylapatak287 Місяць тому

    I love this podcast so much ❤

  • @sofianapoli987
    @sofianapoli987 Місяць тому

    The UA-cam transcript is incorrect! My name is actually spelled with an F, not a PH!

  • @sofianapoli987
    @sofianapoli987 Місяць тому

    Thanks for having me!!

  • @pim5490
    @pim5490 Місяць тому

    I feel like I say this every episode but yall really get the best guest. Sophia was a pure delight and a MUST have on again. She is very informative and sweet and funny and HERSELF which is extraordinary!!!!!

  • @pim5490
    @pim5490 Місяць тому

    Happy Williams Syndrome Awareness Month 💙 ❤️ 💚

  • @pim5490
    @pim5490 2 місяці тому

    I agree with Jen. Meeting others with Williams syndrome is such a amazing thing. You get all these stats, info, test, and search the web for more. I found watching videos of others with WS was very helpful. Of course everyone is different but it does give you a chance to better understand. 😊

  • @pim5490
    @pim5490 2 місяці тому

    Love hearing the yearbook messages ❤

  • @pim5490
    @pim5490 2 місяці тому

    Love that Mike and his parents found out his diagnosis from 60 minutes. Speading awareness is truly life changing. CP can definitely go hand and hand with WS along with Autism. Many dual diagnoses. What a wonderful story. Mike and Jen seem like such kind people. The stars definitely aligned for them ✨️ 💙❤️💚

  • @pim5490
    @pim5490 2 місяці тому

    What a wonderful episode. So much wonderful information and experience sharing. ❤️ As hard as it is to hear and share some tough stories it does get information out there on how others dealt with difficult situations. It hurts my heart to hear Brendan was bullied because he is such a awesome young man but it does show how you can overcome difficult times and still be awesome. Keep sharing and educating others. 💙❤️💚

  • @pim5490
    @pim5490 3 місяці тому

    Can't believe it has been a year. 🎉 Sooooooooooo happy to see Steph and sending many prayers 🙏🏽 and good vibes her way with her health and wellness journey. Wonderful episode and loved the questions being directed towards yall this time. Can't wait to see what all yall will have the next year to come 😊💚❤️💙

  • @pim5490
    @pim5490 4 місяці тому

    Love the new intro ❤ as always very entertaining and informative 💙❤️💚

  • @denisewilson1937
    @denisewilson1937 4 місяці тому

    Great information and discussion. Thank you!

  • @pim5490
    @pim5490 5 місяців тому

    I'd love to see some of Alexandra bracelets making skills. ❤ or videos of their dance classes

  • @mariarincon8800
    @mariarincon8800 5 місяців тому

    My daughter has Williams syndrome. I take her to dance classes. She takes ballet, tap, lyrical, acro, hip hop, stretch, and jazz.

  • @davesteenvoorden3286
    @davesteenvoorden3286 5 місяців тому

    Hello a,m Dave from the 🇳🇱 a,m have willams beuren syndrome to a,m happy to a talk programma comming

  • @gardensofthegods
    @gardensofthegods 5 місяців тому

    There is another reason we need to determine this and I need somebody to advise me on the first step to take is because I would love for my sister to be able to make friends with others who have Williams so she can finally find her own group in this lifetime .

    • @Williams-syndromeOrg
      @Williams-syndromeOrg 5 місяців тому

      Thanks for reaching out. Due to the holidays, we have not seen your comments until today. Our website is always the best place to look first for resources. There are tests that doctors can order that are take-home swab tests, so your sister may not have to go downtown to get tested. I would ask your sister's doctors about that - specifically if she sees a cardiologist. I agree that it would be nice if she had a firm diagnosis so she could find a community and be eligible for some of the services and resources the WSA provides, but it is her choice if she would like to be tested. If you have any other questions, please contact me at jliestman@williams-syndrome.org. Joel Liestman Director of Family Support

  • @denisewilson1937
    @denisewilson1937 6 місяців тому

    Merry Christmas and thank you for sharing your holiday with us! As a William's Syndrome grandma, I have learned so much listening to your podcast. ❤

  • @tobiakbas3323
    @tobiakbas3323 6 місяців тому

    ❤❤❤

  • @tobiakbas3323
    @tobiakbas3323 6 місяців тому

    ❤❤❤

  • @denisewilson1937
    @denisewilson1937 7 місяців тому

    Great discussion addressing some difficult issues. Thank you for your vulnerability and genuineness.

  • @user-zy2fh1ir2y
    @user-zy2fh1ir2y 7 місяців тому

    Hi everyone ❤️

  • @pim5490
    @pim5490 7 місяців тому

    What a great episode with the WS committee talking about the upcoming convention. Great energy and very informative and helpful information to process the excitement and stress of the convention. 💙❤️💚😊

  • @pim5490
    @pim5490 7 місяців тому

    Brendan is such a great story teller. I knew he was interesting and love hearing his experiences and adventures before but this scary haunted experience was a literal edge of my seat kinda story 😳

    • @brendanlemieux6039
      @brendanlemieux6039 7 місяців тому

      Thank you so much, talking about those experiences brought back so many memories but i'm glad i was able to tell that part of my life in that way :)

  • @pim5490
    @pim5490 7 місяців тому

    Love the Halloween effects 🎃 Love the back to the future costume. Love the miss bubble. Lol welcome alien 👽

  • @user-zy2fh1ir2y
    @user-zy2fh1ir2y 7 місяців тому

    Hi everyone ❤️‍🩹

  • @stephaniepeagler3240
    @stephaniepeagler3240 8 місяців тому

    Enjoyed this love callie so much

  • @pim5490
    @pim5490 8 місяців тому

    Hey Anthony 👋🏾 what a wonderful greeter. 😊 love the energy and excitement ❤

  • @pim5490
    @pim5490 8 місяців тому

    Definitely do a truelove 2. Honestly Callie could do just about anything and make it wonderful. She should do positive words everyday. She is truly a blessing to the Williams syndrome family and many many others. ❤

  • @pim5490
    @pim5490 8 місяців тому

    I love Callie and her family. Loved the film they did also. Great episode 💙❤️💚

  • @user-zy2fh1ir2y
    @user-zy2fh1ir2y 8 місяців тому

    Hi everybody 💕

  • @pim5490
    @pim5490 9 місяців тому

    Michelle was a great guest. We just need to figure out cloning so we can put her at every school 😊 she had great information and examples of what to expect or possibly expect etc.

  • @pim5490
    @pim5490 9 місяців тому

    Hope everyone has a great school year. Rather you are there to learn, teach or inspire may your year be blessed. Extra prayes for the parents of students too🙏🏽❤️😊

  • @theoilgrove5593
    @theoilgrove5593 10 місяців тому

    You guys are a blessing from christina